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The State of Olmstead

Brad Williams, NYSILC Executive Director

What is the state of Olmstead in New York State? Olmstead is the 1999 U.S. Supreme Court decision that makes it an act of discrimination to institutionalize a person with a disability against their will, especially when they can live in the community with appropriate supports. It directs states to develop a comprehensive plan to ensure that people have the opportunity to live in the “most integrated setting” possible.

Advocates have gone through an arduous process with the New York State Department of Health (NYS DOH) for over a year to develop two funding opportunities that will address nursing home transition and diversion on a small-scale basis. It's a start and should be recognized. However, this effort is nowhere near the sweeping policy change needed nor the comprehensive effort required to comply with a U.S. Supreme Court decision rendered three years ago.

Based on NYS DOH figures, there are 129,762 people currently in nursing homes in New York State.’ Eighty-seven percent (112,531) are seniors 65 and older. Seven percent (9,027) are between the ages of 21-54, while the remaining six percent (8,204) are people 55-64. What is more disturbing: The volume of seniors currently in nursing homes, or the fact that there are 17,231 working-aged adults held against their will? I am 42 years old and I can't even fathom how I could accept living the rest of my life in a nursing home. I suspect you feel the same. The situation expands further when you consider individuals in psychiatric centers, adult homes, community residences, etc. Besides the “quality of life” argument, hmmm...I wonder what the burden is to New York State taxpayers? Yes, believe it or not, it costs less to provide services to individuals in a community-based setting as opposed to an institution.

This isn't a partisan issue. The Assembly Task Force on People with Disabilities held a hearing on Olmstead almost two years ago. Assembly Speaker Sheldon Silver found it important enough to attend and give the opening comments. Assembly member Kevin Cahill, Chair of the Task Force, made it a priority and authored the “most-integrated setting” bill. It passed unanimously in the Assembly on June 12". Senate Majority Leader Joseph Bruno personally introduced the bill and ushered its unanimous passage through the Senate on June 20". At a recent ADA celebration in Plattsburgh, Assembly member Chris Ortloff spoke about his strong support of Olmstead implementation in New York State. He articulated aspects of the Court’s mandate that proved he had done his homework.

Oh, yes. There is one other person who strongly supports Olmstead implementation. His name is President George W. Bush. He issued an Olmstead executive order as Governor of Texas. The President then issued a similar executive order for our entire country on June 19, 2001. He has followed through with several funding opportunities for States on the most-integrated setting issue.

What about other States? The State of Arkansas has developed a model nursing facility transition program in the meantime. The State of Missouri has passed and implemented legislation that is


' “Number of Medicaid Recipients in Nursing Homes by Age and County FFY 2001

 

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